Autism Register Guidance for GPs

Author Name: Philip Crabtree / Liz Tooke                               Email: philip.crabtree@nhs.net / liz.tooke@nhs.net

Date published: June 2025

Date to review: June 2028

 ·       An Autism Register can help surgeries to better understand and meet the health needs of their autistic patients by providing a mechanism for monitoring equity in how autistic people are accessing Long Term Condition health checks, vaccination programmes, screening programmes etc.

·       This guidance has been developed to enable GP surgeries to create their own practice registers of autistic patients.

·       This can be achieved in a similar way to how practices establish other patient registers (e.g. dementia, diabetes, or learning disabilities), by ensuring that autistic patients have the appropriate clinical codes associated with their patient record.

·       Because there is not currently a QOF defined autism register, NHS South Yorkshire Integrated Care Board (Sheffield) has developed this guidance to help practices to take a robust but easy to follow approach to setting up their registers.